Quality of life improvement in people with spinal cord injury: The transition from rehabilitation hospital to the everyday life from users’ perspective

Authors

  • Mariona Gifre Monreal Institut Guttmann
  • Arantza del Valle Gómez Universitat de Girona
  • Mercè Yuguero Rueda Institut Guttmann
  • Angel Gil Origüen Fundación Institut Guttmann
  • Pilar Monreal Bosch Universitat de Girona

Abstract

Returning process to the everyday life context for a person with spinal cord injury after its Hospitalization period has been defined as a moment of difficulties and personal challenges. 
In this article we show the most prominent factors contributing to improve quality of life from the perspective of the injured people. Two discussion groups, one formed by 12 people with paraplegia, and another formed by 6 people with tetraplejia, have been carried out. Content analysis carried out indicates that participants related quality of life quality once leaving the rehabilitation hospital with to dimensions: a) closer context need of attention and, b) real world preparation. On conclusion, to design integral rehabilitation programme, physical rehabilitation, learning abilities to allow maximum autonomy and, family assessment must be included. 

Keywords

Spinal Cord Injury, Quality of life, Qualitative research

References

Bloor, Michael; Frankland, Jane; Thomas, Michelle y Robson, Kate (2001). Focus Groups in social Research. Thousand Oaks: Sage.

Cabero, Julio y Hernández, María Jesús (1995). Utilización del vídeo para aprender. Una experiencia con los alumnos de Magisterio. Sevilla: S.A.V.

Denise, G. Tate; Kalpakjian, Claire y Forchheimer, Martin (2002). Quality of life issues in individuals with spinal cord injury. Archives of Physical Medicine and Rehabilitation, 83(12 Suppl 2), 18-25.

Duggan, Colette Hillebrand y Dijkers, Marcel (2001). Quality of life aster spinal cord injury: a qualitative study. Rehabilitation Psychology, 46, 3-27.

Elejabarrieta, Francisco (1997). El método lingüístico. Técnicas de obtención de información. Barcelona: Universitat Autònoma de Barcelona. (Texto policopiado: 122 páginas).

Hammell, K. Walley (2004a) Exploring quality of life following high spinal cord injury: a review and critique. Spinal Cord, 42, 491-502

Hammell, K. Walley (2004b). Quality of life among people with high spinal cord injury living in the community. Spinal Cord, 42(11), 607-620

Hammell, K. Walley (2007a). Quality of life after spinal cord injury: meta-synthesis of qualitative findings. Spinal Cord, 45, 124-139.

Hammell, K. Walley (2007b). Experience of rehabilitation following spinal cord injury: a meta-synthesis of qualitative findings. Spinal Cord, 45, 260-274.

Hampton, Nan Zhang y Baolian, Desirée (2004). Dimensions of quality of life for Chinese adults with Spinal Cord Injury: A qualitative study. Disability and Rehabilitation, 4(26), 203-212.

Hu, Yong; Mak, Joseph; Wa Wong, Yat; Leong, John y Luk, Keith (2008). Quality of life of traumatic spinal cord injured patients in Hong Kong. Journal of rehabilitation medicine, 40, 126-131

Lau, Anna y Mckenna, Kryss (2002). Perception of Quality of Life by Chinese elderly persons with stroke. Disability and Rehabilitation, 24(4), 203-208

Leduc, Bernard E. y Lepage, Yves (2002). Health-related quality of life alter spinal cord injury. Disability and Rehabilitation, 24, 196-202.

Schalock, Robert L. y Verdugo, Miguel Angel (2003). Calidad de vida: manual para profesionales de la educación, salud y los servicios sociales. Madrid: Alianza Editorial.

Schopp, Laura; Clark, Mary J.; Hagglund, Kristofer J.; Sherman, Ashley K.; Scout, Brian J.; Gray, David B. y Boninger Mike L. (2007). Life Activities Among Individuals With Spinal Cord Injury Living in the Community: Perceived Choice and Perceived Barriers. Rehabilitation Psychology, 52(1), 82-88

Sherer, Marcia y Cushman, Laura (2001). Measuring subjective quality of life following spinal cord injury: a validation study of the assistive technology device predisposition assessment. Disability and Rehabilitation, 23, 387-393.

Strauss, Anselm y Corbin, Juliet (1991). Basics of Qualitative Research: Grounded Theory: Procedures and Techniques (2nd ed.). Newbury Park, CA: Sage Publications.

Verdugo, Miguel Ángel (2006). Cómo mejorar la calidad de vida de las personas con discapacidad. Instrumentos y estrategias de evaluación. Salamanca: Amarú Ediciones.

Vissers, Maaike; Van den Berg-Emons, Rita; Sluis, Tebbe; Bergen, Michael; Stam, Henk y Bussmann Hans (2008). Barriers to and facilitators of everyday physical activity in persons with a spinal cord injury after discharge from the rehabilitation centre. Journal of rehabilitation medicine: official journal of the UEMS European Board of physical and Rehabilitation medicine, 40(6), 461-467.

Author Biographies

Mariona Gifre Monreal, Institut Guttmann

Estudiante del Màster d’Investigació en Psicologia Social de la Universitat Autònoma de      Barcelona. (Barcelona- Espanya).

Becaria de Investigación, Fundació Privada, Institut Guttmann. Hospital de Neurorehabilitació-Universitat Autònoma de Barcelona. Barcelona, Espanya.

 

Arantza del Valle Gómez, Universitat de Girona

Profesora Titular del Departament de Psicologia de la Universitat de Girona. (Girona- Espanya) Miembro del Grup de Investigación ECIS (Envejecimiento, Cultura y Salud).

Mercè Yuguero Rueda, Institut Guttmann

Cap de Area de Treball Social. Fundació Privada, Institut Guttmann Hospital de Neurorehabilitació-Universitat Autònoma de Barcelona. Barcelona, Espanya.  

 

Angel Gil Origüen, Fundación Institut Guttmann

Coordinador del Laboratori d'Estudis de Qualitat de Vida. Fundació Institut Guttmann. Barcelona, Espanya

 

Pilar Monreal Bosch, Universitat de Girona

Profesora Titular del Departament de Psicologia de la Universitat de Girona. (Girona- Espanya). Directora del Grupo de Investigación ECIS. (Envejecimiento, Cultura y Salud)

 

Published

2010-07-05

How to Cite

Gifre Monreal, M., del Valle Gómez, A., Yuguero Rueda, M., Gil Origüen, A., & Monreal Bosch, P. (2010). Quality of life improvement in people with spinal cord injury: The transition from rehabilitation hospital to the everyday life from users’ perspective. Athenea Digital. Revista De Pensamiento E investigación Social, (18), 3–15. https://doi.org/10.5565/rev/athenead/v0n18.708

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